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PCOS experience
Symptoms 5-8yrs
26 years old
🇬🇧 United Kingdom
  •  3 weeks ago

I was diagnosed after being to the doctors a couple of times over the years due to hirsutism since my late teens. I was originally told it wasn't PCOS and then went back to the doctor when I was about 22/23 as I was struggling to regulate my weight and was experiencing excessive male patterned hair growth. At the time they finally did diagnosed me with PCOS but said it was 'partial' as I didn't have enough symptoms - my symptoms were mostly hirsutism and weight gain, but I had regular periods. I find it incredibly difficult to live with the excess hair growth and have to keep on top of it on almost a daily basis & it has impacted my self confidence. Similarly experiencing difficulties maintaining my weight has been a struggle over the past few years - I've tried low carb diets to manage insulin resistance but it's been a balancing game of this and not falling into disordered eating.

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Symptoms

Depression and/or anxiety

17


Treatments

Spironolactone

3

0 helpful

0 comments

PCOS experience
Symptoms 3-5yrs
28 years old
🇬🇧 United Kingdom
  •  1 month ago

Found out I had PCOS after a routine appointment about my injection contraception as I’d been bleeding the entire time and they were concerned. Was advised that my symptoms were all PCOS related and I’d likely never had a ‘regular’ real period in the last year I had been transitioning between the pill to the injection as my cycle was ranging from 19 days up to 35. I had been given advice on the excessive weight I’d started rapidly gaining too along with the facial hair I’ve struggled with since I was a teenager. Unfortunately my symptoms have only worsened and I have become pre-diabetic too.


Symptoms

Depression and/or anxiety

20


Treatments

Anti-depressants

9

0 helpful

0 comments

PCOS experience
Symptoms 10+yrs
33 years old
🇬🇧 United Kingdom
  •  1 month ago

I was diagnosed by my dr at 16. The hardest physical thing for me is probably the hair growth and weight. I have to be very strict with my eating and exercise. I’ve found i have to limit calories right down to under 1,500 and exercise with strength based activities to keep my weight maintained. The hair is a constant battle but i recently found sugaring and it’s much more effective for me than waxing


Symptoms

Depression and/or anxiety

16


Treatments

Anti-depressants

5

0 helpful

0 comments

PCOS experience
Symptoms 10+yrs
31 years old
🇬🇧 United Kingdom
  •  1 month ago

I was diagnosed late as I started having heavy and irregular periods at 11 and was put on the pill without any real conversation. I had terrible acne and fatigue until I was 17 with multiple pcos symptoms but my old doctor refused to test me as I didn't have diabetes,wasn't overweight and had good blood pressure. Luckily my family doctor had experience with pcos and got me an internal scan that showed pcos instantly. I've managed my symptoms for years through diet and exercise. Since I got married 2 years ago after 18 years on the pill, I have undertaken fertility tests and although discouraged from coming off the pill after being told I'd need internal scrapings etc and petrifying me (again male gp). I made the decision to come off the pill 12 weeks ago and although i can't say it was the best decision yet but I do feel more in control of my body and the choices I'm making. I wish there was more funding and understanding of pcos because it isn't one size fits all and simply putting girls on the pill from young ages without actually informing them of their choices can be extremely harmful to their mental health and self worth later on. I think women should be able to feel more empowered about their medical choices and it shouldn't be a taboo


Symptoms

Depression and/or anxiety

12


Treatments

Antibiotics

9

0 helpful

0 comments

PCOS experience
Symptoms 1-3yrs
33 years old
🇬🇧 United Kingdom
  •  1 month ago

Was not told much when diagnosed at all. GP just told me to come back when looking to get pregnant. Took years for me to identify the mental health side of the symptoms. We need more information about this.


Symptoms

Depression and/or anxiety

5


Treatments

Exercise

3

1 helpful

0 comments

PCOS experience
Symptoms 1-3yrs
28 years old
🇬🇧 United Kingdom
  •  10th May 24

- gained a lot of weight - went to gynea who did an ultrasound and saw the cysts - struggled to lose any weight over the past year - high cortisol - inflammation - need to be careful with inflammatory foods


Symptoms

Depression and/or anxiety

8


Treatments

Exercise

4

0 helpful

0 comments

PCOS experience
Symptoms 5-8yrs
30 years old
🇬🇧 United Kingdom
  •  8th May 24

I was diagnosed after coming off the pill at age 21 after being on the pill since I was 16. When I came off the pill my periods didn’t come back and lots of excess body hair grew. I was diagnosed with PCOS and put back on the hormonal contraceptive pill. In 2021 I decided I wanted to be hormone free so against advice I came off the hormonal pill. It took me a year before my periods came back and I had really bad acne during this time. At first they weren’t regular but they have got more and more regular as the years have gone on to about every 4-6 weeks. I now have the copper coil and feel much happier now that I don’t have hormones in my body. I do experience anxiety but I’m not sure if this is a result of my PCOS. Other symptoms I have experienced are acne, for which I went to a dermatologist and they gave me products which have pretty much cleared my skin. I do also have some excess body hair which has definitely made me feel self conscious. I find waxing to be the best method of hair removal. I’m currently getting laser hair removal which is helping! Sending hope to all those with PCOS!


Symptoms

Depression and/or anxiety

20


Treatments

Dianette

6

0 helpful

0 comments

PCOS experience
Symptoms <1yr
30 years old
🇬🇧 United Kingdom
  •  7th May 24

I started suspecting I had PCOS about three months after stopping the combined pill I was on (Eloine). I had been on the pill for over five years and previous to that, my periods were regular. Around three to four months after stopping it, my cycle started getting increasingly irregular (ranging from 31 to 52 days) and my skin started breaking out badly (again, something I had never had any big issues with). Over six months in, I’m suffering from fairly severe acne and facial hair growth. I went to my GP over two months ago - they first dismissed my concerns as I’m particular slender and they said my irregular period was due to my weight. After pushing for more tests, they book me in for a pelvic ultrasound which showed bilateral ovarian cysts. I’m now waiting to get my period to do early days (1-3) blood tests to confirm the diagnosis. My main suggestion is to trust your instincts and really push for your GP to do the extra tests - unfortunately PCOS is as common as it is disregarded, but it can have such a massive impact on your life (I’m trying for a baby and obviously was distraught at the news this would now be difficult).


Symptoms

Depression and/or anxiety

21


Treatments

Anti-depressants

5

0 helpful

0 comments

PCOS experience
Symptoms 1-3yrs
27 years old
🇬🇧 United Kingdom
  •  7th May 24

I was diagnosed with pcos when I had been struggling to conceive for over a year. I had been to the gp and after further investigations and a hycosy it was discovered I had pcos. It has impacted me with trying to conceive and it has taken 6 fialed rounds of assisted ovulation and 4+ years to finally fall pregnant. My main symptoms were the irregular periods, this is something that is quite difficult to live with as it not only effects ttc but also your mood and hormones.


Symptoms

Depression and/or anxiety

14


Treatments

Provera

2

0 helpful

0 comments

PCOS experience
Symptoms 1-3yrs
22 years old
🇬🇧 United Kingdom
  •  7th May 24

My symptoms started at around 13 years of age, I went to my doctor with my mum to talk about my periods not levelling out and not being regular. The doctor was a guy and offered contraception. He then told me it was just my hormones that needed to be levelled out. So I took this information And went with it and from there until around 20 years of age my periods were pretty much non-existent and were only regular when I was taking the combined pill. I then started getting migraines and ended up in the hospital due to a suspected stroke, they said it would be my combined pill that had caused the stroke like symptoms. Then realised that I needed to go on some sort of contraception due to being sexually active but knew that I couldn’t go onto the combined pill as I was told my BMI was over 35. So I took the progesterone only pill and that completely stopped my periods but actually also caused some spotting as well. I thought to myself, do I really need this contraception? Because I have had unprotected sex and not been pregnant. I then went back to my GP and told them about all of my symptoms, they tested for all conditions like a sexually transmitted infection or disease to which I was completely clear for . They then referred me to a specialist gynaecology who then did an internal and external ultrasound on my vaginal area which confirmed polycystic ovaries. They said that I needed to go back to my GP to get my bloods done again to rule out PCOS. The GP told me that my bloods suggested that I have polycystic ovarian syndrome. They then referred me to another specialist gynaecologist who Then saw me and told me there was nothing they could do and suggested I go onto birth control. At this point I asked what birth control as I have tried absolutely everything. He said that PCOS cannot be cured but can only be managed. So I said yes, I understand that, but what can I do to manage this. He told me that my GP , should have been managing this in the first place. So went to my GP and told them what they had recommended and they ended up prescribing me hormone replacement therapy which they told me is a very very low-dose therapy and is not considered as contraception due to the incredibly low-dose. From there, I have just learnt to manage everything on my own. No psychological therapies to help with the process of actually receiving the diagnosis of PCOS, instead I had to invest with my own money and take all of the supplements I can think of, I now have extremely chronic fatigue every day and periods every three months. I’ve got some acne around my chin area but apart from that, I just live my life and try to eat as healthily as possible combining that with going to the gym every day.


Symptoms

Depression and/or anxiety

17


Treatments

Exercise

5

0 helpful

0 comments

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