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I was experiencing blood in my stool that synced up with my menstrual cycle. This was bleeding from the rectum when going to the toilet and sometimes on its own. I also had heavy periods and pain, but it was the bleeding that made me see a doctor. I have had colonoscopies that have not shown anything else and it’s suspected to be endometriosis growing on my bowels. The wait for gynocologist has been 9 months so far. I was put on the combined pill which has helped to manage my symptoms, however I have developed pulmonary embolisms (blood clots in both of my lungs) and so have had to stop taking the pill and symptoms have returned. The risk of blood clots is extremely low and the combined pill was a good option for reducing effects of endometriosis.

Experienced extremely heavy bleeding during my period that would last 7-8 days. Became anaemic for a few years due to my extremely heavy flow. Pain wasn’t too bad to begin with but got worse over the years. Got prescribed the pill for about 10 years. It helped somewhat but not enough so I had to do continuous pill taking to only have a couple of withdrawal bleeds a year. After 10+ years of trying to advocate for myself that something wasn’t right, I was referred to a gynaecologist. Finally had a laparoscopy and was diagnosed with Stage 1 endometriosis. Now trying the Mirena Coil to help reduce my heavy bleeds.

I was diagnosed by two different gynaecologists. I have been managing my symptoms with the pill as other natural remedies did not work.

I experienced severe nausea , along with diarrhea and horrendous period pain . I had a laparoscopy and was told I had stage 1 endometriosis on the muscles supporting the uterus - for which the most common symptom is bad pain

My periods were very heavy and painful right from the start at age 13. I was put on the pill by my GP aged 17 but not investigated. This made things manageable regarding bleeding and flooding, although I had all of the other symptoms described and my periods were always 7-10 days long. Aged 30, the pill just stopped controlling everything and I was bleeding all of the time. I tried different pills, mirena coil (helped for about 18 months, then a replacement coil had to be removed after 6 weeks due to intense pain), until eventually I stopped everything. I was in a job where I could manage my own diary and would schedule/re-schedule appointments accordingly but was always told by the medical profession to just 'live with it'. Eventually, aged 48, I had a hysterectomy and was diagnosed with endometriosis and adenomyosis. To say I felt let down and angry is an understatement - I finally started my life aged 48.

I've had severe back en stomach pain continuously throughout my life, since the age of 14. Periods started only because I got on the pill at age 17. Periods were extremely painful, felt terribly ill everytime for at least 10 days. Got irritable bowl syndrome, intermittent fever syndrome, extreme back pain. The pain kept me up at night for 8 years. Had to stop working. Had surgery 6 months ago: it's a piece of cake compared to the suffering before. The backpain was instantly gone. Had a mass on my uterus and the endometriosis in my uterine bands flipped my uterus, a very painful condition. Endometriose caused adhesions in my lower pelvis. Releasing these adhesions had major impact on bowl symptoms and abdominal and lower back pain.

After around 4 years of being on naproxen (after trying over the counter pain relief) and being diagnosed with “dysmenorrhea/bad period pains” I asked my GP to refer me a gynaecologist! Alongside the severe pains I was experiencing on and around my period, I also experienced vomiting and fainting episodes. I had previously been diagnosed with IBS but have noticed this seems to be at its worst when I am ovulating. After being referred to a gynaecologist and having a laparoscopy, stage 1/2 endo was found. Since surgery I had around 6 months of lessened symptoms and then the pain has gradually increased again over time. However, I have noticed my GP now take my symptoms a lot more seriously following my diagnosis and are more keen to keep on top of my chronic pain.